The Obsessive Joy Of Autism
I am autistic. I can talk; I talked to myself for a long time before I would talk to anyone else. My sensory system is a painful mess, my grasp on language isn’t always the best, and it takes me quite some time to process social situations. I cannot yet live on my own or manage college or relationships successfully. I can explain, bemoan, and wish away a lot of things about me and my autism: my troubles finding the right words to say what I really mean, my social processing lag and limits, my rubbery facial expressions, my anxiety, my sensory system’s dysfunctions, my brain’s tendency to get stuck in physical self-destruct mode and land me in the ER. I can complain about the suckiness of being socialized and educated as an autistic and as an outsider, about lack of supports and understanding and always needing to educate.
One of the things about autism is that a lot of things can make you terribly unhappy while barely affecting others. A lot of things are harder.
But some things? Some things are so much easier. Sometimes being autistic means that you get to be incredibly happy. And then you get to flap. You get to perseverate. You get to have just about the coolest obsessions. (Mine are: sudoku and Glee. I am not ashamed.)
Now, maybe you do not understand. Because “obsession” and even “perseveration” have specific dictionary and colloquial meanings which everyone uses and understands and which do not even come CLOSE to describing my relationship with whatever I’m obsessing on now. It’s not just that I am sitting in my room and my heart is racing and all I can think about is Glee and all I want to do is read about it and talk about it and never go to sleep because that would take time away from this and that has been my life for the past few days. It’s not just that I am doing sudokus in my head or that I find ways to talk about either numbers or Glee in any conversation, including ones about needing to give a student a sensory break so he’ll stop screaming and throwing things.
(It’s not just the association and pressure of shame, because when ever an autistic person gets autistically excited about something, there will be people there to shame and bully them, and some of us will internalize that shame and lock away our obsessions and believe the bullies and let them take away this unique, untranslatable joy and turn it into something dirty and battered.)
It’s not any of that. Those are all things neurotypicals can understand and process. This goes beyond that. It’s not anything recognized on the continuum of “normal”.
It’s that the experience is so rich. It’s textured, vibrant, and layered. It exudes joy. It is a hug machine for my brain. It makes my heart pump faster and my mouth twitch back into a smile every few minutes. I feel like I’m sparkling. Every inch of me is totally engaged in and powered up by the obsession. Things are clear.
It is beautiful. It is perfect.
I flap a lot when I think about Glee or when I finish a sudoku puzzle. I make funny little sounds. I spin. I rock. I laugh. I am happy. Being autistic, to me, means a lot of different things, but one of the best things is that I can be so happy, so enraptured about things no one else understands and so wrapped up in my own joy that, not only does it not matter that no one else shares it, but it can become contagious.
This is the part about autism I can never explain. This is the part I never want to lose. Without this part autism is not worth having.
Neurotypical people pity autistics. I pity neurotypicals. I pity anyone who cannot feel the way that flapping your hands just so amplifies everything you feel and thrusts it up into the air. I pity anyone who doesn’t understand how beautiful the multiples of seven are, anyone who doesn’t get chills when a shadow falls just so across a solitaire game spread out on the table. I pity anyone who is so restrained by what is considered acceptable happiness that they will never understand when I say that sometimes being autistic in this world means walking through a crowd of silently miserable people and holding your happiness like a secret or a baby, letting it warm you as your mind runs on the familiar tracks of an obsession and lights your way through the day.
It takes a million different forms. A boy pacing by himself, flapping and humming and laughing. An “interest” or obsessions that is “age appropriate”—or maybe one that is not. A shake of the fingers in front of the eyes, a monologue, an echolaliated phrase. All of these things autistic people are supposed to be ashamed of and stop doing? They are how we communicate our joy.
If I could change three things about how the world sees autism, they would be these. That the world would see that we feel joy—sometimes a joy so intense and private and all-encompassing that it eclipses anything the world might feel. That the world would stop punishing us for our joy, stop grabbing flapping hands and eliminating interests that are not “age-appropriate”, stop shaming and gas-lighting us into believing that we are never, and can never be, happy. And that our joy would be valued in and of itself, seen as a necessary and beautiful part of our disability, pursued, and shared.
This is about the obsessive joy of autism. So I guess, if I’m trying to explain what an obsession (and, by necessity, obsessive joy) means to me as an autistic person, I can bring it back to the tired old image of a little professor cornering an unsuspecting passerby and lecturing them for half an hour. All too often this encounter is viewed through the terrified eyes of the unwillingly captive audience. I’d like to invite you to see through the eyes of the lecturer, who is not so much determined to force their knowledge into you as they are opened to a flood of joy which they cannot contain.
And why would you want to contain something like that?

Thank you for this. This is the first description of what obsessions are like that I’ve ever see, and I completely agree with it. Obsessions are wonderful.
Shwoo (@Shw00)
October 3, 2011 at 5:35 am
[...] The Obsessive Joy of Autism appears here by permission. [...]
The Obsessive Joy Of Autism | Neurodiversity
November 30, 2011 at 2:19 am
[...] She felt happy and wondered if she’d ever felt this happy before. The gold light, the falling seeds, the dancing bees … it was all one thing. This was the opposite of the dark desert. Here, light was everywhere and filled her up inside. She could feel herself here but see herself from above, twirling with a buzzing shadow that sparkled golden as the light struck the bees. Moments like this paid for it all. “This is the part about autism I can never explain. This is the part I never want to lose. Without th…“ [...]
Still Half Drunk With Delight | Neurodiversity
December 10, 2011 at 2:42 am
Wonderful, Really incredible. Hart moving, tears, joy.
Thank you for giving us the opportunity to share your thoughts.
Elaine Ossipov
December 12, 2011 at 8:42 am
[...] about my self, my privacy, or my belongings. Indeed, my distress when several things I had charished as perhaps only an Autistic can were lost in our move to Pennsylvania were added to my greed and willfulness. The only “Cardinal [...]
On Childish Things I « Cracked Mirror in Shalott
December 12, 2011 at 6:27 pm
Thank you so much for sharing all this! I am moved and inspired and feel a deep sense of shared humanity with you right now. Thanks for explaining obsessive joy and flapping. I already understood spinning and rocking and recommend it for everyone (especially children). I think vestibular stimulation is good for humans
Hugs, Shelly
Shelly B Phillips (@awakeshelly)
December 14, 2011 at 11:54 pm
Sharing your blog with my middle school students with autism if that’s ok…? Thanks!
Cheryl Palen
December 15, 2011 at 7:41 pm
Oh my god, yes, please, that is the goal! If any of them are interested in any kind of dialogue, or have any questions or anything they’d like to share, please let me know!
Julia
December 15, 2011 at 7:44 pm
[...] The Obsessive Joy of Autism appears here by permission. [...]
The Obsessive Joy of Autism | TheOtherSide ofNormal
December 15, 2011 at 9:28 pm
Hi, English is not my mother language, sorry if I´m not able to make myself clear enough….
My daughter is 3 years old and an autism person, I do not want her to loose certain manners such her finger movements, etc,… as a matter of fact -even before reading your wonderful descripcion of obsseive joy of autism- I always have think she should be very happy with that which makes me happier too of course, but what about some other things such as: when something that at the beginning makes you happy (such playing with your hair or knocking your fronthead with mirrors) becomes a dangerous motive joy for you because the intensity is increasing day after day .Thank you and regards from Spain / Marta & Helena
Marta Patiño
December 24, 2011 at 6:35 am
I LOVE IT !!
Felipe Murillo
December 26, 2011 at 2:33 pm
[...] Just Stimming Share this:TwitterFacebookGostar disso:GostoSeja o primeiro a gostar disso post. Filed under [...]
A alegria obsessiva do autismo « Tratando de perspectivas.
January 1, 2012 at 6:26 pm
Beautifully written. Thank you. There is such a deficit of appreciating the brilliance associated with Autism. More attention needs to be directed towards learning from high interests and joys vs demanding that individuals with Autism fit the mold and jump through all the hoops of the expected societal norms. With your permission, I would like to repost your essay on my blog: http://www.vortexspectacular.com
vortexspectacular
January 8, 2012 at 1:41 pm
This made me sad. In a good way.
sanabituranima
January 12, 2012 at 7:06 pm
My son is 3-years-old and has been officially diagnosed with autism for just over a year, although we knew a while before that. It’s impossible for me to watch his happy stimming and consider stopping him–how can I tell him it’s wrong to feel that way? When something really tickles him and he starts grinning and flapping and jumping and shaking, it is, as you said, contagious. It makes ME happy. I won’t take that away from him. Thank you for the insight. <3
Ambermist (@battlechicken)
February 17, 2012 at 1:24 pm
thank you for that. it givs better insite into my sons world. iv allways thout ther was something so beautifull about him and how happy he is. He is truly a joy to me and everyone that knows him. he is a wonderfull kid i wory that happy side of him will fade as his simtoms of autisum fade . dio you have any thouts on that ?
autisum can be beautifull ignorincs is the tragiety
thank you agen
Dan Bodwell
March 11, 2012 at 9:04 pm
This is fantastic. Thank you.
Amber R. Sesnick
April 18, 2012 at 3:13 pm
[...] friend of mine posted a link to an article that I had the pleasure of reading today. I hope you will take the time to read it as well. [...]
Unexpected Inspiration – The Obsessive Joy of Autism | think. innovate. create.
April 18, 2012 at 3:36 pm
Wow. Brilliant. Autistic/aspie hugs!
Rylie Whitchurch (@whitchry9)
August 12, 2012 at 2:05 am
[...] reader shared the blog post with me, “The Obsessive Joy of Autism,” this week and I thought it was so beautiful that I wanted to share it here with you. [...]
Seven Snippets: September 14, 2012
September 14, 2012 at 8:51 am
That is a brilliant article I’m glad I took the time to read it.
Justin FloggingMollyfanatic Stewart
September 14, 2012 at 10:42 am
I really agree with you. My son with ASD also has many joyful things those are not understanding for NT’s view. Thanks for sharing your story.
Kyung-ah Lee
October 3, 2012 at 7:23 am
[...] Again from Julia, her post, The Obsessive Joy of Autism: [...]
How My Fears Drove Me To Pursue a Cure | Emma's Hope Book
October 4, 2012 at 9:25 am
Superb article! I’ve never come across any description which makes it so easy to identify with flapping, or perseveration. Congratulations on the engaging writing too.
I have a question, though.
I’ve been studying the influence of the ‘built environment’, that is how rooms, corridors, staircases and such are laid-out. And also how much light, noise, cold, warm is bearable for people with autism who live, work, learn or enjoy their leisure time in these buildings. That’s not all: one can expand the qualities of spaces (in and outdoors, such as in gardens or patio’s) to include the smoothness of walls, the visibility of radiators, the height and the material of fences, the lighting of garden paths – you name it: anything in and around buildings which may hinder or help people with the most varied autistic traits.
My question is two-fold: are these qualities of the environment important to you? If so: how?
The second part is: how important do you think these things are to some or most people with autism? And if they are in your experience: how come they’re seldom or never included in stories such as yours. You mention so many things, among which sensory problems, but not this issue.
I’m really curious and of course anyone who has something to sat on the subject is more than welcome.
Flip from the Netherlands
Flip Schrameijer
October 29, 2012 at 8:53 am
[...] The obsessive joy of autism [...]
Mostly links. | Diversity is Art
November 13, 2012 at 11:30 am
{Hugs}
A wonderful explanation. I don’t feel like this as often as I want (my ASD is co-morbid with clinical depression), but when I’m writing… oh, *YES*! *This* is how I feel! It’s so much a part of me….
Thank you for the wonderfully descriptive post.
tagAught
January 25, 2013 at 10:49 am
I’ve seen the glimmer of this joy on my son’s face but your description has made it all crystal clear. thank you, thank you, thank you.
Melinda Newton
January 27, 2013 at 2:47 am
[...] March 1st, 2012 I read Julia Bascom‘s post ~ The Obsessive Joy of Autism. A post she’d written almost a year before, but I was only now reading. Her post begins [...]
The Influence of Others | Emma's Hope Book
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